The things I was once able to do

Posted on December 11, 2008. Filed under: The things I was once able to do | Tags: , , , , , , , , , , , , , |

Get up and walk across the room like a 36 year old.  (Now it’s like I’m 96)

Brush my teeth without pain in my hands.  (now my hands are so stiff, my fingers hardly go around the toothbrush)

Put my makeup on.  (now my hands fall asleep while holding the mascara)

Blow dry my hair.  (now my hands and arms get so tired before I am done, I have to take a break)

All of the above with no problems at all.  (now I low back, hips, legs and feet are in excruciating pain within 10 minutes of standing in the bathroom)

Cook dinner.  (same as above, the lower half of my body just doesn’t allow for standing long periods of time on the kitchen floor)

Open jars. (I cannot grip them hard enough, because of my fingers to open them)

Write with a pen or pencil.  (now I have to type everything, because my hands hurt so bad, sometimes it’s even hard to do that)

Ride in a car.  (now if I sit for too long, my legs hurt so bad, sometimes we have to pull over and let me get out and stretch for a minute)

Drive a car.  (now because of the narcotics, I have a hard time staying awake, so sleepy!!!)

Work at any job outside my home. (there is no way, physically I can go to work for someone else, they would fire me for calling in too much)

Run and play with my children. (now I get too tired, too easily and the pain is just too much)

Talk on the phone for longer than 5 minutes. (just holding the phone makes my hand fall asleep, I have to switch hands often)

Put my necklaces on, wear my rings, button my clothes, or tie my shoes.  (All of these things are very difficult for me because my hands just don’t work the way they use to, due to swelling and stiffness)

Go to parties, or go out with my friends. (the pain of riding in the car to get there, the fatigue after only a little while, the pain of standing or sitting around too long, it all effects my social life tremendously)

Remember things, and concentrate. (because of the medicines I am on, I have a hard time remembering things, and my concentration is out the window)

Praying.  (because of the concentration, or lack of, I have a hard time praying, thank God He knows my heart)

Being in a crowded/loud room. (because of the meds., constant or loud noise, drives me crazy, I get the shakes and get really ill)

Hold a new baby.  (even though they are small, they are too heavy for my shoulders to hold.  My shoulders get tired so quickly and hurt so bad)

I’m sure there are many more things, that I just cannot think of right now.  These things and more, I’m sure you have experienced.  I do know that once my surgeries are over and I am back on my RA meds., things will be better, like they were before, but until then, I am grieving the loss of the function of my own body.

May you all be blessed with mobility and a pain free day,

Kim

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One Response to “The things I was once able to do”

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I feel really bad that anyone else out there can have a list so identical to my own. The most heartbreaking to me has been realizing that when my husband and I adopt that we’ll have to adopt someone old enough and able enough to not need to be picked up and such. It’s really been an added grief process for me to give up the idea of having babies, but between my arthritis pain, and infertility it seems like God, and my body has closed that door for us.

I know it’s little consolation to tell you again that you are writing my own journey with A.S. but I hope it at least helps to know that because I know just how oppressing this disease is I’m able to pray with you about it, and I see God using both of us in our blogs and the open honest descriptions we post about our journeys of faith while in the valley’s of A.S.

As a side note, I’ve asked for a walker for Christmas, and think it will help me a lot. I just worry about the shoulders, but as a friend wish Fibromyalgia said, at least with the walker the weight is distributed evenly, something that is an issue when I walk with a cane.

Also, as far as cooking goes, something I got wise to pretty early on was cooking while sitting on a bar stool. I actually have two different heights too, I have a taller one for when it’s more just fatigue that makes me need to sit while I cook, and then I have a shorter one for when I can’t really spend the energy to climb up the other, lemme tell you I use the short one almost every meal, but I’m so glad I invested in them.

Do you follow Lisa Copen’s articles and her ministry Hopekeepers? She wrote once that a tip she learned was to ask people around for help, she said that she’s gotten accustomed to asking the clerk in the check out to pop the lid of whatever is for dinner, just enough to loosen it for her. I thought it might be work a try sometime. Fortunately for me my dear husband usually is willing to help with grocery shopping and can opening, but I do know it’s a burden.

This time of year is hard for us, I’m praying for both of us, for God to give us strength in the things He knows we need strength for.

I was also wondering, have you had any improvement on your ability to get to church? I finally was able to go last Sunday, I almost didn’t make it sitting that long, but I got through it. This weekend is feeling worse then last though, so I may be spending sunday on the couch in the nursery this sunday. It’s snowing right now too so I wonder if we’ll even make it out to church, but I hope so.

Sorry my comments always turn out to be more like a letter.
Peace and Christmas cheer,
Crystal


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