Comments on: The things I was once able to do http://confessionsofanramom.com/2008/12/11/the-things-i-was-once-able-to-do/ Coping with Autoimmune Diseases Spiritually Thu, 02 Jul 2009 05:59:56 +0000 http://wordpress.com/ hourly 1 By: celestialfreak http://confessionsofanramom.com/2008/12/11/the-things-i-was-once-able-to-do/#comment-57 celestialfreak Sat, 13 Dec 2008 06:28:40 +0000 http://confessionsofanramom.com/?p=596#comment-57 I feel really bad that anyone else out there can have a list so identical to my own. The most heartbreaking to me has been realizing that when my husband and I adopt that we'll have to adopt someone old enough and able enough to not need to be picked up and such. It's really been an added grief process for me to give up the idea of having babies, but between my arthritis pain, and infertility it seems like God, and my body has closed that door for us. I know it's little consolation to tell you again that you are writing my own journey with A.S. but I hope it at least helps to know that because I know just how oppressing this disease is I'm able to pray with you about it, and I see God using both of us in our blogs and the open honest descriptions we post about our journeys of faith while in the valley's of A.S. As a side note, I've asked for a walker for Christmas, and think it will help me a lot. I just worry about the shoulders, but as a friend wish Fibromyalgia said, at least with the walker the weight is distributed evenly, something that is an issue when I walk with a cane. Also, as far as cooking goes, something I got wise to pretty early on was cooking while sitting on a bar stool. I actually have two different heights too, I have a taller one for when it's more just fatigue that makes me need to sit while I cook, and then I have a shorter one for when I can't really spend the energy to climb up the other, lemme tell you I use the short one almost every meal, but I'm so glad I invested in them. Do you follow Lisa Copen's articles and her ministry Hopekeepers? She wrote once that a tip she learned was to ask people around for help, she said that she's gotten accustomed to asking the clerk in the check out to pop the lid of whatever is for dinner, just enough to loosen it for her. I thought it might be work a try sometime. Fortunately for me my dear husband usually is willing to help with grocery shopping and can opening, but I do know it's a burden. This time of year is hard for us, I'm praying for both of us, for God to give us strength in the things He knows we need strength for. I was also wondering, have you had any improvement on your ability to get to church? I finally was able to go last Sunday, I almost didn't make it sitting that long, but I got through it. This weekend is feeling worse then last though, so I may be spending sunday on the couch in the nursery this sunday. It's snowing right now too so I wonder if we'll even make it out to church, but I hope so. Sorry my comments always turn out to be more like a letter. Peace and Christmas cheer, Crystal I feel really bad that anyone else out there can have a list so identical to my own. The most heartbreaking to me has been realizing that when my husband and I adopt that we’ll have to adopt someone old enough and able enough to not need to be picked up and such. It’s really been an added grief process for me to give up the idea of having babies, but between my arthritis pain, and infertility it seems like God, and my body has closed that door for us.

I know it’s little consolation to tell you again that you are writing my own journey with A.S. but I hope it at least helps to know that because I know just how oppressing this disease is I’m able to pray with you about it, and I see God using both of us in our blogs and the open honest descriptions we post about our journeys of faith while in the valley’s of A.S.

As a side note, I’ve asked for a walker for Christmas, and think it will help me a lot. I just worry about the shoulders, but as a friend wish Fibromyalgia said, at least with the walker the weight is distributed evenly, something that is an issue when I walk with a cane.

Also, as far as cooking goes, something I got wise to pretty early on was cooking while sitting on a bar stool. I actually have two different heights too, I have a taller one for when it’s more just fatigue that makes me need to sit while I cook, and then I have a shorter one for when I can’t really spend the energy to climb up the other, lemme tell you I use the short one almost every meal, but I’m so glad I invested in them.

Do you follow Lisa Copen’s articles and her ministry Hopekeepers? She wrote once that a tip she learned was to ask people around for help, she said that she’s gotten accustomed to asking the clerk in the check out to pop the lid of whatever is for dinner, just enough to loosen it for her. I thought it might be work a try sometime. Fortunately for me my dear husband usually is willing to help with grocery shopping and can opening, but I do know it’s a burden.

This time of year is hard for us, I’m praying for both of us, for God to give us strength in the things He knows we need strength for.

I was also wondering, have you had any improvement on your ability to get to church? I finally was able to go last Sunday, I almost didn’t make it sitting that long, but I got through it. This weekend is feeling worse then last though, so I may be spending sunday on the couch in the nursery this sunday. It’s snowing right now too so I wonder if we’ll even make it out to church, but I hope so.

Sorry my comments always turn out to be more like a letter.
Peace and Christmas cheer,
Crystal

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